Tag Archives: multiple sclerosis

April 2 – Napping…

One of my earliest school memories was my preschool teacher complaining to my mother that I would not take a nap.  All this poor woman wanted was one hour of escape from 4 year old screams and cries – but I wouldn’t give it to her.  I would lie on my mat and talk, or sing, or sneak a book to read.  Why would I waste an hour of my day sleeping when there were so many more fun things to do?

Fast forward 30 some odd years, throw in a chronic illness and a hectic job and you have yourself a woman craving just 15 minutes where she could lay her head on her desk.

Unfortunately, my job does make it difficult to take a catnap midday. There is always someone calling, coming to the door or a tour out that needs some help.  However, I could feel my health suffering because of my fatigue.  I needed to find at least 20 minutes to carve out of my day to just unplug.

So yesterday, I did it!  My first midday nap while at work!  I know it seems simple, but it really did make all the difference.  I locked the door, put a sign out that said “Will return in 15 minutes”, turned off the ringer on the phone and let my guides know to call my cell if there was an emergency.  Then I stretched out on a cot in the back and closed my eyes for 15 blissful minutes.  I was helped out by a handy-dandy app on my phone called Power Nap with Andrew Johnson.  He is a hypnotist with a soothing Scottish accent that had me relaxed instantly and let me feel refreshed and energetic the rest of the day (good thing, since my day went to 8 pm!)

This was a “Thing I’ve Never Done” that is sure to turn into a “Thing I’ll Want to Do Everyday” for sure!  Maybe a move to Spain where the whole city shuts down mid-day is in the cards for me…

 

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50 (ish) Miles From Home

Last weekend I participated in the Challenge Walk for MS in Charleston, South Carolina.  It was an event that I had been training for and raising money for since November.  I’m happy to say I raised over $4000 for Multiple Sclerosis Research!  Yayyyy!  Now, I could recap the whole thing, but I video blogged the weekend, and complied it all here for you to enjoy…

50 Miles!

There you have it!  Thanks for watching, and thank you so much to those of you that helped me raise $4000 for MS!

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The New Normal (Or, Seizing The Carp)

When I decided to start this blog, it was solely to chronicle my adventures during the next 12 months.  Why I chose to do these adventures wasn’t  to be a big part of it, and I didn’t want to bore everyone with why I have this bucket list.

Yesterday, however, I received some news that shook me to the core.  One of my oldest friends here in Atlanta died suddenly.  He had been battling melanoma, but I don’t think anyone was prepared for him to go so suddenly.

It brought into sharp focus how precious this gift of life is to us all.  We are lucky every day that we are on this earth, and the idea that it could all go away suddenly makes you want to squeeze every last drop out of it.

About 4 months ago I was diagnosed with Multiple Sclerosis.  This was definitely a life changing moment, and everyday has been an exercise in learning what my “new normal” is.  From now on, it will be normal for me to have to take nerve blockers daily for pain that make me sleepy and cognitively fuzzy.  It is normal for me to jab myself with a needle once a week with medicine to keep me from having another exacerbation of MS.  It’s normal for me to open a new doctor’s bill every time I get the mail.  And it’s normal for me to have that niggling fear in the back of my brain that while my MS is manageable now, one day it might not be.

Also, I’m re-learning what I can and can’t do physically because of the fatigue associated with MS.  That was the real reason behind this list.  I wanted to make sure that everyday the list of things I “can’t” do shrinks, and the list of things I “can” do grows and becomes a list of things I have done.

This year is the year for me to push the limits and discover what the next “New Normal” is.  I’m looking forward to it.

So, in the spirit of Mr. Keating and Newsies, I shall let 2012 be the year I seize the day!

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